How to Donate

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FOP Friends is a fully registered charity in England and Wales 1147704 and in Scotland SC046950

We are proud to declare that over 95% of fundraised money goes to supporting our quest to find a treatment and a cure for FOP.

We are registered with the Fundraising Regulator and abide by their standards.   

We are not a big charity.  We are not funded by the government, NHS, or big business. Money raised by our fabulous supporters go towards our quest for a treatment and a cure.  Other projects, such as the newsletter, school book, and Center Parcs, are funded through grants secured by the charity.

Your donations are the difference between research continuing and it stopping completely: even the smallest donations make a biggest difference.

Ways to donate

There are many ways to make a donation to FOP Friends. One of the easiest ways to to set up a Regular Donation.  This can be done as a direct debit through your bank, or via our Virgin Money Giving page.  You can also use the Virgin Money page to make a single donation.

If you would like to discuss making a planned future donation, e.g. gifts by will, or legacy giving, please get in touch.

Gift Aid it!  #TickTheBox

By gift-aiding your donation you can add an extra 25% to your donation at no extra cost to yourself.  Click here for FAQs about gift-aiding your donation.

It is easy to giftaid a donation using Virgin Money Giving, you just #TickTheBox.  If you would like to make a donation with cash or a cheque, please click here to download our Gift Aid Form.


All direct donations are gratefully received via our Virgin Money Giving page and we can claim Gift Aid.  You can even set up monthly donations of any size.  Even the smallest donations make a big difference.


FOP Friends is registered with and who help us to raise money when our supporters (you) shop online.

It works in a similar way to many other loyalty shopping sites, but instead of earning points when you shop, you raise a donation for your cause instead.  It’s as simple as that!

You can shop with over 2,000 well known stores and each will donate up to 15% of what you spend. It does not cost you anything and you pay the same price as everyone else: the only difference is, your purchase also raises money for FOP Friends.



FOP Friends is happy to receive postal donations.  Please make cheques payable to “FOP Friends” and post them to:

1 Cumberland Road, Sale, Cheshire, M33 3FR.

To allow us to claim gift aid on postal donations please print, complete and include with your donation the GiftAid declaration form.

Please take the time to nominate us at your child’s school, your workplace, and in your local community.  Every nomination will truly help on this journey to find effective treatments for FOP.

We will be happy to provide information about FOP and the charity, and support wherever possible.

We have a Corporate Fundraising Pack and Schools Fundraising Pack available for free download.

Donor Charter

FOP Friends is grateful to all the generous donors who support the charity on the journey to raise awareness and find treatments/a cure for FOP.  Without your support, we would not be able to continue our work.


When you donate to FOP Friends, we commit to always:

  • Informing donors about how the charity intends to use all donations
  • Using donations responsibly, ensuring the best for the charity and the UK FOP community
  • Communicating honestly, professionally, and in a timely manner
  • Respecting the donor’s right to confidentiality and anonymity
  • Keeping donors updated with emails, newsletters, and social media posts