Siblings and FOP

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Living with FOP as an individual is a challenge, but having a sibling with a rare disease brings its own challenges and emotional journey.  Many siblings of someone with FOP take on a caring role too.

Sibs is the UK’s charity, dedicated to supporting indivuals who have a sibling with a disability.  Their webiste has a wealth of information, advice and guidance for adults, including where you can connect with other siblings in a similar situation.  You can download an eBook with advice for adult siblings here:

They also launched at sister charity, Young Sibs, which is focussed on the needs and feelings of young people who have a sibling with a disability.

The charity Contact also has some resources about supporting the siblings of someone with a disability.  There is also a downloadable guide too.