Nicky’s daughter Isla was one of the youngest children to be diagnosed with FOP. After coming to terms with the initial shock of diagnosis, Nicky began fundraising to support the search for treatments. Along with her network of friends and family, Nicky continues to organise a series of successful events and sponsored sporting activities to raise funds in aid of FOP Friends. Nicky works part-time as a Marketing Campaigns Manager for Avaya and she has used her business contacts to gain support for the charity from several large companies and organisations.